An Introduction – My Perfect Son Has Cerebral Palsy

[fusion_text]My son, Brennen is ten years old, and has a diagnosis of Spastic Tetraparetic Cerebral Palsy, Seizure Disorder, Global Developmental Delay and Cortical Visual Impairment. First, here is a little background on Cerebral Palsy. Cerebral Palsy is not a disease. Cerebral Palsy is an umbrella term for motor disability. It is caused by damage to […]

An Open Letter To Parents: Guilt, Loss And Regret

[fusion_text][dropcap]I[/dropcap] don´t know what its like to have a child with CP, and I don’t know what it feels like when you are told the diagnosis for the first time. However, I think we can all benefit from talking about the hard things, the things that  we would rather keep to ourselves, in the fear […]

True and False Ableism

Nathan Keirn

[fusion_text][dropcap]A[/dropcap]fter having observed a growing trend in the community of what I would call a forming schism between those with CP (or disabled in general) and those able bodied, in many cases parents of children with CP, I feel I have to write about this topic. It greatly saddens me to see this division forming, […]

Growing Up with Independence: Not Easy but Essential

[fusion_text][dropcap]M[/dropcap]y beautiful Allison was born on October 19, 1999. She was my third child at the time, and there were no issues with her full-term delivery. At around 16-months, we noticed that she was not reaching many of the usual mobility milestones. This is when more than ten years of testing began in an attempt […]

CP and Guilt – No, It´s not Your Fault

https://www.flickr.com/photos/ragnarokr/2411474106/

[fusion_text][dropcap]H[/dropcap]ave you ever felt guilty about your child´s CP? Have you ever felt like maybe you did something wrong, that just maybe if you had done something differently this wouldn´t have happened? Do you feel guilty for thinking or feeling any of the above? You are not alone, there is nothing wrong with you, and […]

How To Talk to Your Child about CP

[fusion_text][dropcap]H[/dropcap]ow do you talk to your child about the CP? Do you tell them exactly what it is, or do you break it to them in softer terms? And when is a good time to talk about these things? As a parent maybe you are also feeling apprehensive and scared to talk to your child […]

Does Your Child Hate Physical Therapy?

Physical Therapy and CP

[fusion_text][dropcap]Y[/dropcap]ou keep telling your child over and over again to please do their exercises or wear their night splints. You know its good for them, and that i1’s important for them later in life. Yet they respond by blatantly refusing, taking off their splints or may even throw a tantrum. Here is a few tips […]

Early Childhood and CP

childhood and cp

[fusion_text][dropcap]O[/dropcap]ne of the first times I understood I was different was in kindergarten, I had to be wheeled around if we were going on excursions, whereas the other kids would walk. I understood I was different, but I don’t think I was bothered by it. It was just widely accepted that, that was the way […]

The Mental Challenges of SD

Courtesty of sspivak @ freeimages.com

[fusion_text]   Why me? This is so unfair,  I didn´t deserve this.  I am sure I could do so much if I wasn´t born with this.  I´ll show them all! I am worthless, I can´t do anything.  I am just a burden to everyone.  I´m going to fail at it, I am sure.  I´ll never be […]