13 09, 2015

An Introduction – My Perfect Son Has Cerebral Palsy

By |September 13th, 2015|Parenting|0 Comments

My son, Brennen is ten years old, and has a diagnosis of Spastic Tetraparetic Cerebral Palsy, Seizure Disorder, Global Developmental Delay and Cortical Visual Impairment.

First, here is a little background on Cerebral Palsy. Cerebral Palsy is not a disease. Cerebral Palsy is an umbrella term for motor disability. It is caused by damage to one […]

31 08, 2015

An Open Letter To Parents: Guilt, Loss And Regret

By |August 31st, 2015|Parenting|27 Comments

I don´t know what its like to have a child with CP, and I don’t know what it feels like when you are told the diagnosis for the first time. However, I think we can all benefit from talking about the hard things, the things that  we would rather keep to ourselves, in the fear […]

16 01, 2015
  • Nathan Keirn

True and False Ableism

By |January 16th, 2015|Mental, Parenting|0 Comments

After having observed a growing trend in the community of what I would call a forming schism between those with CP (or disabled in general) and those able bodied, in many cases parents of children with CP, I feel I have to write about this topic. It greatly saddens me to see this division forming, […]

14 01, 2015

Growing Up with Independence: Not Easy but Essential

By |January 14th, 2015|Parenting|4 Comments

My beautiful Allison was born on October 19, 1999. She was my third child at the time, and there were no issues with her full-term delivery. At around 16-months, we noticed that she was not reaching many of the usual mobility milestones. This is when more than ten years of testing began in an attempt […]

12 01, 2015

CP and Guilt – No, It´s not Your Fault

By |January 12th, 2015|Mental, Parenting|5 Comments

Have you ever felt guilty about your child´s CP? Have you ever felt like maybe you did something wrong, that just maybe if you had done something differently this wouldn´t have happened? Do you feel guilty for thinking or feeling any of the above? You are not alone, there is nothing wrong with you, and […]

20 09, 2014

How To Talk to Your Child about CP

By |September 20th, 2014|Parenting|7 Comments

How do you talk to your child about the CP? Do you tell them exactly what it is, or do you break it to them in softer terms? And when is a good time to talk about these things? As a parent maybe you are also feeling apprehensive and scared to talk to your child […]

28 08, 2014
  • Physical Therapy and CP

Does Your Child Hate Physical Therapy?

By |August 28th, 2014|Parenting|8 Comments

You keep telling your child over and over again to please do their exercises or wear their night splints. You know its good for them, and that i1’s important for them later in life. Yet they respond by blatantly refusing, taking off their splints or may even throw a tantrum. Here is a few tips […]

7 08, 2014
  • childhood and cp

Early Childhood and CP

By |August 7th, 2014|Mental, Parenting, Physical|17 Comments

One of the first times I understood I was different was in kindergarten, I had to be wheeled around if we were going on excursions, whereas the other kids would walk. I understood I was different, but I don’t think I was bothered by it. It was just widely accepted that, that was the way […]

14 07, 2014
  • Courtesty of sspivak @

The Mental Challenges of SD

By |July 14th, 2014|Mental, Parenting|3 Comments

 Why me? This is so unfair,  I didn´t deserve this.  I am sure I could do so much if I wasn´t born with this.  I´ll show them all! I am worthless, I can´t do anything.  I am just a burden to everyone.  I´m going to fail at it, I am sure.  I´ll never be able […]