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October 2015

  • The Dark Side of CP

The Dark Side of CP

By |October 3rd, 2015|

This post is written by my “dark side”; the part of my mind, that is no longer allowed control and direction, but that I thought I´d let out for this post, in hopes that others would understand that they are not alone. Perhaps also to show parents and others, some of the thoughts that may […]

September 2015

  • Teenage years and CP

Teenage Years and CP

By |September 30th, 2015|

This post will be sort of a tie in to my previous and rather popular post Early Childhood and CP. This one as you may have guessed from the title will revolve around my teenage years, and how the CP affected me during those already turbulent times.

Click play to listen to a recording of this post:

In […]

A Thank You to a Physio

By |September 20th, 2015|

I don’t do well with change and yesterday was a big change for me. I had a seating appointment to make adjustments to my chairs, but it was also my last official appointment with the physiotherapist that has worked with me as long as I can remember. I didn’t show it when we were saying […]

An Introduction – My Perfect Son Has Cerebral Palsy

By |September 13th, 2015|

My son, Brennen is ten years old, and has a diagnosis of Spastic Tetraparetic Cerebral Palsy, Seizure Disorder, Global Developmental Delay and Cortical Visual Impairment.

First, here is a little background on Cerebral Palsy. Cerebral Palsy is not a disease. Cerebral Palsy is an umbrella term for motor disability. It is caused by damage to one […]

Tribute to Cerebral Palsy

By |September 11th, 2015|

I have hated you, I have cursed you, and I have admitted defeat to you, I have wanted to escape life with you. But today I want to thank you, for all the things you have given to me, and I hope that you will continue to help me learn things as I go through […]

The World Was Not Made For Me – CP and Accessibility

By |September 6th, 2015|

When you have a physical limitation, to get through a day requires so much awareness to what is around you. How long will it take to get to meetings? Whether you can enter a building in the front. Maybe you have go through the only assessable door to end up on the opposite end the […]

Cerebral Palsy and Pain

By |September 2nd, 2015|

Pain. We all feel it. The only difference is how much we feel. That’s why doctors invented the pain scale. It’s a way to measure pain when patients can’t describe it. A ten is the absolute worst pain you’ve ever felt. On the opposite end of the scale a one indicates hardly any pain at […]

August 2015

An Open Letter To Parents: Guilt, Loss And Regret

By |August 31st, 2015|

I don´t know what its like to have a child with CP, and I don’t know what it feels like when you are told the diagnosis for the first time. However, I think we can all benefit from talking about the hard things, the things that  we would rather keep to ourselves, in the fear […]

Are We Really That Different?

By |August 27th, 2015|

We are constantly confronted with the differences between able-bodied and disabled people, and my focus here is to explore whether or not this impacts the quality of life that disabled people have. It’s a common assumption that people with disabilities are less fortunate and unable to lead a fulfilling life. Of course, I can recognise […]

  • Cerebral Palsy and Sexuality

Cerebral Palsy and Sexuality

By |August 24th, 2015|

Sex. A topic that invoke feelings and thoughts of happiness and sadness, fear and joy, insecurity and intimacy to name a few, whether they have CP or not. But when you have CP it can complicate matters a little, both physically and emotionally. And while I have been somewhat reluctant to write about this, I think it […]